Caregiving References

Geri R. Hall, PhD, ARNP, FAAN

Andersson A.  Levin LA.  Emtinger BG. (2002). The economic burden of informal care. International Journal of Technology Assessment in Health Care.  18(1):46-54.

Beeri MS.  Werner P.  Davidson M.  Noy S. (2002). The cost of behavioral and psychological symptoms of dementia (BPSD) in community dwelling Alzheimer's disease patients. International Journal of Geriatric Psychiatry.  17(5):403-8.

Boaz RF. (1996). Full-time employment and informal caregiving in the 1980s. Medical Care.  34(6):524-36.

Bogardus ST.  Bradley EH.  Williams CS.  Maciejewski PK.  van Doorn C.  Inouye SK. (2001).   Goals for the care of frail older adults: do caregivers and clinicians agree?[comment]. American Journal of Medicine. 110(2):97-102.

Brouwer WB.  Koopmanschap MA.  Rutten FF. (1998). Patient and informal caregiver time in cost-effectiveness analysis. A response to the recommendations of the Washington Panel. International Journal of Technology Assessment in Health Care.  14(3):505-13.

Cagney KA.  Agree EM. (1999). Racial differences in skilled nursing care and home health use: the mediating effects of family structure and social class. Journals of Gerontology Series B-Psychological Sciences & Social Sciences.  54(4):S223-36.

Covinsky KE.  Eng C.  Lui LY.  Sands LP.  Sehgal AR.  Walter LC.  Wieland D.  Eleazer GP.  Yaffe K. (2001). Reduced employment in caregivers of frail elders: impact of ethnicity, patient clinical characteristics, and caregiver characteristics. Journals of Gerontology Series A-Biological Sciences & Medical Sciences.  56(11):M707-13.

Covinsky KE.  Landefeld CS.  Teno J.  Connors AF Jr.  Dawson N.  Youngner S.  Desbiens N.  Lynn J.  Fulkerson W.  Reding D.  Oye R.  Phillips RS. (1996). Is economic hardship on the families of the seriously ill associated with patient and surrogate care preferences? Archives of Internal Medicine.  156(15):1737-41.

Desbiens NA.  Mueller-Rizner N. (2000). How well do surrogates assess the pain of seriously ill patients?[comment].  Critical Care Medicine.  28(5):1347-52.

Donelan K.  Hill CA.  Hoffman C.  Scoles K.  Feldman PH.  Levine C.  Gould D. (2002). Challenged to care: informal caregivers in a changing health system. Health Affairs.  21(4):222-31.

Doty P.  Jackson ME.  Crown W. (1998).  The impact of female caregivers' employment status on patterns of formal and informal eldercare.   Gerontologist.  38(3):331-41.

Emanuel EJ.  Fairclough DL.  Slutsman J.  Alpert H.  Baldwin D.  Emanuel LL. (1999). Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. New England Journal of Medicine.  341(13):956-63.

Emanuel EJ.  Fairclough DL.  Slutsman J.  Emanuel LL. (2000). Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Annals of Internal Medicine.  132(6):451-9.  

Fredriksen KI. (1999). Family caregiving responsibilities among lesbians and gay men. Social Work.  44(2):142-55.

Hayes KS. (2000). Literacy for health information of adult patients and caregivers in a rural emergency department. Clinical Excellence for Nurse Practitioners.  4(1):35-40.

Hayman JA.  Langa KM.  Kabeto MU.  Katz SJ.  DeMonner SM.  Chernew ME.  Slavin MB.  Fendrick AM. (2001). Estimating the cost of informal caregiving for elderly patients with cancer. Journal of Clinical Oncology.  19(13):3219-25.

Hickenbottom SL.  Fendrick AM.  Kutcher JS.  Kabeto MU.  Katz SJ.  Langa KM. (2002). A national study of the quantity and cost of informal caregiving for the elderly with stroke.[comment]. Neurology.  58(12):1754-9.

Hickenbottom SL.  Fendrick AM.  Kutcher JS.  Kabeto MU.  Katz SJ.  Langa KM. (2002).

Hopp FP. (1999). Patterns and predictors of formal and informal care among elderly persons living in board and care homes. Gerontologist.  39(2):167-76.

Horsley S.  Barrow S.  Gent N.  Astbury J. (1998). Informal care and psychiatric morbidity. Journal of Public Health Medicine.  20(2):180-5. 

Janicki M.  McCallion P.  Force LT.  Bishop K.  LePore P. (1998). Area agency on aging outreach and assistance for households with older carers of an adult with a developmental disability. Journal of Aging & Social Policy.  10(1):13-36.

Jecker NS. (2002). Taking care of one's own: justice and family caregiving. Theoretical Medicine & Bioethics.  23(2):117-33.

King KM.  Koop PM (1999). The influence of the cardiac surgery patient's sex and age on care-giving received. Social Science & Medicine.  48(12):1735-42.

Kramer BJ.  Lambert JD. (1999). Caregiving as a life course transition among older husbands: a prospective study. Gerontologist.  39(6):658-67

Langa KM.  Chernew ME.  Kabeto MU.  Herzog AR.  Ofstedal MB.  Willis RJ.  Wallace RB.  Mucha LM.  Straus WL.  Fendrick AM. (2001). National estimates of the quantity and cost of informal caregiving for the elderly with dementia. Journal of General Internal Medicine.  16(11):770-8. 

Langa KM.  Fultz NH.  Saint S.  Kabeto MU.  Herzog AR. (2002). Informal caregiving time and costs for urinary incontinence in older individuals in the United States. Journal of the American Geriatrics Society.  50(4):733-7.

Marosy JP. (1998).  Working caregivers. A growing market. Caring.  17(9):12-4, 17.

McCann JJ.  Hebert LE.  Beckett LA.  Morris MC.  Scherr PA.  Evans DA. (2000). Comparison of informal caregiving by black and white older adults in a community population. Journal of the American Geriatrics Society.  48(12):1612-7..

Moore MJ.  Zhu CW.  Clipp EC. (2001). Informal costs of dementia care: estimates from the National Longitudinal Caregiver Study.  Journals of Gerontology Series B-Psychological Sciences & Social Sciences.  56(4):S219-28..

Mort JR.  Gaspar PM.  Juffer DI.  Kovarna MB.(1996). Comparison of psychotropic agent use among rural elderly caregivers and noncaregivers. Annals of Pharmacotherapy.  30(6):583-5..

Navaie-Waliser M.  Feldman PH.  Gould DA.  Levine C.  Kuerbis AN.  Donelan K. (2001). The experiences and challenges of informal caregivers: common themes and differences among whites, blacks, and hispanics. Gerontologist.  41(6):733-41..

Ory MG.  Hoffman RR 3rd.  Yee JL.  Tennstedt S.  Schulz R. (1999). Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist.  39(2):177-85..

Port CL.  Gruber-Baldini AL.  Burton L.  Baumgarten M.  Hebel JR.  Zimmerman SI.  Magaziner J. (2001). Resident contact with family and friends following nursing home admission. Gerontologist.  41(5):589-96.

Pruchno RA.  Burant CJ.  Peters ND. (1997). Typologies of caregiving families: family congruence and individual well-being. Gerontologist.  37(2):157-67.

Robinson KM. (1997). Family caregiving: who provides the care, and at what cost?. Nursing Economics.  15(5):243-7.

Samsa GP.  Hoenig H.  Branch LG. (2001).  Relationship between self-reported disability and caregiver hours. American Journal of Physical Medicine & Rehabilitation.  80(9):674-84.

Schneider J.  Hallam A.  Murray J.  Foley B.  Atkin L.  Banerjee S.  Islam MK.  Mann A. (2002). Formal and informal care for people with dementia: factors associated with service receipt. Aging & Mental Health.  6(3):255-65.

Schulz R.  Beach SR. (1999). Caregiving as a risk factor for mortality: the Caregiver Health Effects Study.[comment].  JAMA.  282(23):2215-9.

Sevick MA.  Bradham DD. (1997). Economic value of caregiver effort in maintaining long-term ventilator-assisted individuals at home. Heart & Lung: Journal of Acute & Critical Care.  26(2):148-57.

Shelton P.  Schraeder C.  Dworak D.  Fraser C.  Sager MA. (2001). Caregivers' utilization of health services: results from the Medicare Alzheimer's Disease Demonstration, Illinois site.[comment]. Journal of the American Geriatrics Society.  49(12):1600-5.

Small GW.  McDonnell DD.  Brooks RL.  Papadopoulos G. (2002). The impact of symptom severity on the cost of Alzheimer's disease. Journal of the American Geriatrics Society.  50(2):321-7.

Spillman BC.  Pezzin LE. (2000). Potential and active family caregivers: changing networks and the "sandwich generation".  Milbank Quarterly.  78(3):347-74, 339.

Toseland RW.  McCallion P.  Gerber T.  Banks S. (2002). Predictors of health and human services use by persons with dementia and their family caregivers. Social Science & Medicine.  55(7):1255-66.

Uttl B.  Santacruz P.  Litvan I.  Grafman J. (1998). Caregiving in progressive supranuclear palsy.[comment]. Neurology.  51(5):1303-9.

Waters K.  Allsopp D.  Davidson I.  Dennis A. (2001). Sources of support for older people after discharge from hospital: 10 years on. Journal of Advanced Nursing.  33(5):575-82.

Yamamoto-Mitani N.  Aneshensel CS.  Levy-Storms L. (2002). Patterns of family visiting with institutionalized elders: the case of dementia. Journals of Gerontology Series B-Psychological Sciences & Social Sciences.  57(4):S234-46.